TY - JOUR
T1 - Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy
AU - Nabukera, Sarah K.
AU - Romitti, Paul A.
AU - Campbell, Kimberly A.
AU - Meaney, F. John
AU - Caspers, Kristin M.
AU - Mathews, Katherine D.
AU - Sherlock, Stacey M.Hockett
AU - Puzhankara, Soman
AU - Cunniff, Christopher
AU - Druschel, Charlotte M.
AU - Pandya, Shree
AU - Matthews, Dennis J.
AU - Ciafaloni, Emma
N1 - Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was funded by a grant (U01DD000189) sponsored by the Centers for Disease Control and Prevention.
PY - 2012/6
Y1 - 2012/6
N2 - Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy was examined using interview reports from caregivers enrolled in the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. Of the 200 caregivers interviewed, 160 (80%) reported "ever" using complementary and alternative medicine for their affected children. Mind-body medicine (61.5%) was most frequently used, followed by biologically based practices (48.0%), manipulative and body-based practices (29.0%), and whole medical systems (8.5%). Caregivers reporting use of whole medical systems had higher education and income levels compared with nonusers; affected males had shorter disease duration. Caregivers reporting use of mind-body medicine, excluding aquatherapy, had higher education level compared with nonusers. Overall, complementary and alternative medicine use was high; disease duration, education, and income levels influenced use. These findings have implications for developing clinical care protocols and monitoring possible interactions between complementary and alternative medicine and conventional medical therapies.
AB - Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy was examined using interview reports from caregivers enrolled in the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. Of the 200 caregivers interviewed, 160 (80%) reported "ever" using complementary and alternative medicine for their affected children. Mind-body medicine (61.5%) was most frequently used, followed by biologically based practices (48.0%), manipulative and body-based practices (29.0%), and whole medical systems (8.5%). Caregivers reporting use of whole medical systems had higher education and income levels compared with nonusers; affected males had shorter disease duration. Caregivers reporting use of mind-body medicine, excluding aquatherapy, had higher education level compared with nonusers. Overall, complementary and alternative medicine use was high; disease duration, education, and income levels influenced use. These findings have implications for developing clinical care protocols and monitoring possible interactions between complementary and alternative medicine and conventional medical therapies.
KW - Becker
KW - Duchenne
KW - complementary and alternative medicine
KW - muscular dystrophy
UR - http://www.scopus.com/inward/record.url?scp=84861315690&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84861315690&partnerID=8YFLogxK
U2 - 10.1177/0883073811426501
DO - 10.1177/0883073811426501
M3 - Article
C2 - 22156783
AN - SCOPUS:84861315690
SN - 0883-0738
VL - 27
SP - 734
EP - 740
JO - Journal of Child Neurology
JF - Journal of Child Neurology
IS - 6
ER -