TY - JOUR
T1 - The lived experience of positive airway pressure therapy in patients with obstructive sleep apnea across the lifespan
T2 - a qualitative study
AU - Simon, Stacey L.
AU - Stephenson, Judith J.
AU - Haynes, Kevin
AU - Kennedy, Elaine Rose
AU - Frydman, Gilles
AU - Amdur, Adam
AU - Parthasarathy, Sairam
N1 - Publisher Copyright:
© 2024 American Academy of Sleep Medicine. All rights reserved.
PY - 2024
Y1 - 2024
N2 - Study Objectives: Although treatment of obstructive sleep apnea (OSA) with positive airway pressure (PAP) therapy is effective, adherence is often poor. Understanding the patient perspective is needed to inform adherence-promoting interventions. This qualitative study assessed the experiences, preferences, facilitators, and barriers surrounding PAP therapy for the management of OSA in patients from adolescence to older adulthood. Methods: Eligible participants ages 19 and older were identified from administrative health care claims; adolescent participants ages 12–18 and their parents/caregivers were identified via electronic health records of a tertiary sleep specialty clinic at a large children’s hospital. Forty English-speaking patients and 10 parents of adolescents diagnosed with OSA and prescribed PAP therapy completed semistructured 60-minute telephone interviews conducted by a trained facilitator. Common themes and illustrative quotes were identified. Results: Themes around OSA diagnosis, initiating OSA treatment, learning about OSA/PAP, decision to start PAP, PAP benefits and challenges, and reasons for nonadherence were identified. Participants suggested design and delivery changes to improve PAP devices. Issues unique to adolescents and their parents were discussed. Conclusions: The unique perspectives of patients regarding PAP therapy should be taken into consideration when developing interventions to increase PAP adherence and improve clinical care. Based on identified themes, opportunities for intervention may exist at all stages of care, from diagnosis to treatment initiation. Involving partners, parents, and other caregivers in PAP therapy may be beneficial for optimizing adherence.
AB - Study Objectives: Although treatment of obstructive sleep apnea (OSA) with positive airway pressure (PAP) therapy is effective, adherence is often poor. Understanding the patient perspective is needed to inform adherence-promoting interventions. This qualitative study assessed the experiences, preferences, facilitators, and barriers surrounding PAP therapy for the management of OSA in patients from adolescence to older adulthood. Methods: Eligible participants ages 19 and older were identified from administrative health care claims; adolescent participants ages 12–18 and their parents/caregivers were identified via electronic health records of a tertiary sleep specialty clinic at a large children’s hospital. Forty English-speaking patients and 10 parents of adolescents diagnosed with OSA and prescribed PAP therapy completed semistructured 60-minute telephone interviews conducted by a trained facilitator. Common themes and illustrative quotes were identified. Results: Themes around OSA diagnosis, initiating OSA treatment, learning about OSA/PAP, decision to start PAP, PAP benefits and challenges, and reasons for nonadherence were identified. Participants suggested design and delivery changes to improve PAP devices. Issues unique to adolescents and their parents were discussed. Conclusions: The unique perspectives of patients regarding PAP therapy should be taken into consideration when developing interventions to increase PAP adherence and improve clinical care. Based on identified themes, opportunities for intervention may exist at all stages of care, from diagnosis to treatment initiation. Involving partners, parents, and other caregivers in PAP therapy may be beneficial for optimizing adherence.
KW - adolescence
KW - older adults
KW - sleep-disordered breathing
KW - treatment adherence
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U2 - 10.5664/jcsm.10890
DO - 10.5664/jcsm.10890
M3 - Article
C2 - 37882633
AN - SCOPUS:85186748534
SN - 1550-9389
VL - 20
SP - 407
EP - 416
JO - Journal of Clinical Sleep Medicine
JF - Journal of Clinical Sleep Medicine
IS - 3
ER -