The care of my child with cancer: A new instrument to measure caregiving demand in parents of children with cancer

Diane Keegan Wells; Kelly James; Janet L. Stewart; Ida M. Moore; Katherine Patterson Kelly; Barbara Moore; Dana Bond; Joy Diamond; Brenda Hall; Rosemary Mahan; Lona Roll; Beth Speckhart

doi:10.1053/jpdn.2002.124113

The care of my child with cancer: A new instrument to measure caregiving demand in parents of children with cancer

Diane Keegan Wells, Kelly James, Janet L. Stewart, Ida M. Moore, Katherine Patterson Kelly, Barbara Moore, Dana Bond, Joy Diamond, Brenda Hall, Rosemary Mahan, Lona Roll, Beth Speckhart

Nursing, College of

Research output: Contribution to journal › Article › peer-review

32 Scopus citations

Abstract

The growing societal trend toward delivering more and more illness-related care in the home, driven both by family preferences and by mandates from third-party reimbursers, places additional responsibilities for increasingly complex caregiving on parents of children with serious illness. This article reports on the development and initial field test of The Care of My Child with Cancer, a caregiving demand instrument specific to the childhood cancer population. The instrument demonstrated strong internal consistency and test-retest reliability, and exploratory factor analysis provided initial evidence for the instrument's construct validity. The instrument will now be applied in a collaborative program of nursing research to further investigate caregiving demand and ultimately to develop nursing interventions to maximize medical and quality of life outcomes for children with cancer and their families.

Original language	English (US)
Pages (from-to)	201-210
Number of pages	10
Journal	Journal of pediatric nursing
Volume	17
Issue number	3
DOIs	https://doi.org/10.1053/jpdn.2002.124113
State	Published - 2002

ASJC Scopus subject areas

Pediatrics

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10.1053/jpdn.2002.124113

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title = "The care of my child with cancer: A new instrument to measure caregiving demand in parents of children with cancer",

abstract = "The growing societal trend toward delivering more and more illness-related care in the home, driven both by family preferences and by mandates from third-party reimbursers, places additional responsibilities for increasingly complex caregiving on parents of children with serious illness. This article reports on the development and initial field test of The Care of My Child with Cancer, a caregiving demand instrument specific to the childhood cancer population. The instrument demonstrated strong internal consistency and test-retest reliability, and exploratory factor analysis provided initial evidence for the instrument's construct validity. The instrument will now be applied in a collaborative program of nursing research to further investigate caregiving demand and ultimately to develop nursing interventions to maximize medical and quality of life outcomes for children with cancer and their families.",

author = "Wells, {Diane Keegan} and Kelly James and Stewart, {Janet L.} and Moore, {Ida M.} and Kelly, {Katherine Patterson} and Barbara Moore and Dana Bond and Joy Diamond and Brenda Hall and Rosemary Mahan and Lona Roll and Beth Speckhart",

note = "Funding Information: This study was supported in part by the Association of Pediatric Oncology Nurses' Joanne Scungio Research Award and by research funds from the Pediatric Oncology Group. The authors also wish to acknowledge the following individuals: Pamela J. Hinds, PhD, RN, FAAN, for her constructive review and support in bringing this manuscript to publication; Kristen Sawyer, CTR, for data entry and management; and Brad Pollock, MPH, PhD, and Barbara Marks, PhD, RN, for statistical support.",

year = "2002",

doi = "10.1053/jpdn.2002.124113",

language = "English (US)",

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AU - Moore, Ida M.

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AU - Moore, Barbara

AU - Bond, Dana

AU - Diamond, Joy

AU - Hall, Brenda

AU - Mahan, Rosemary

AU - Roll, Lona

AU - Speckhart, Beth

N1 - Funding Information: This study was supported in part by the Association of Pediatric Oncology Nurses' Joanne Scungio Research Award and by research funds from the Pediatric Oncology Group. The authors also wish to acknowledge the following individuals: Pamela J. Hinds, PhD, RN, FAAN, for her constructive review and support in bringing this manuscript to publication; Kristen Sawyer, CTR, for data entry and management; and Brad Pollock, MPH, PhD, and Barbara Marks, PhD, RN, for statistical support.

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The care of my child with cancer: A new instrument to measure caregiving demand in parents of children with cancer

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