TY - JOUR
T1 - Supporting new community-based participatory research partnerships
AU - Teufel-Shone, Nicolette I.
AU - Schwartz, Anna L.
AU - Hardy, Lisa J.
AU - de Heer, Hendrik D.
AU - Williamson, Heather J.
AU - Dunn, Dorothy J.
AU - Polingyumptewa, Kellen
AU - Chief, Carmenlita
N1 - Funding Information:
Abstract: Marginalized communities have a documented distrust of research grounded in negative portrayals in the academic literature. Yet, trusted partnerships, the foundation for Community-Based Participatory Research (CBPR), require time to build the capacity for joint decision-making, equitable involvement of academically trained and community investigators, and co-learning. Trust can be difficult to develop within the short time between a funding opportunity announcement and application submission. Resources to support community-and academic-based investigators’ time to discuss contexts, concerns, integration of expertise and locally acceptable research designs and data collection are limited. The National Institutes of Health (NIH) funded Center for American Indian Resilience and the Southwest Health Equity Research Collaborative have implemented an internal funding mechanism to support community and academic-based investigators’ travel cost and time to discuss complementary areas of interest and skills and to decide if moving forward with a partnership and a collaborative grant proposal would be beneficial to the community. The rationale and administration of this Community-Campus Partnership Support (CCPS) Program are described and four examples of supported efforts are provided. Centers and training programs frequently fund pilot grants to support junior investigators and/or exploratory research. This CCPS mechanism should be considered as precursor to pilot work, to stimulate partnership building without the pressure of an approaching grant application deadline.
Funding Information:
Recognizing the time and financial challenges faced by academic institutions, agencies, and communities interested in collaborating, the Center for American Indian Resilience (CAIR), a NIH National Institute on Minority Health and Health Disparities (NIH-NIMHD) funded P20 Exploratory Research Center of Excellence (2012–2017), developed a strategy to support new investigative partnerships, the Community-Campus Partnership Support (CCPS) Program. The success of this approach, assessed by the continuation of the partnerships beyond the CCPS funding and submission of co-developed grant proposals, led to the implementation of the support mechanism by the Southwest Health Equity Research Collaborative (SHERC) (2017–2022), a NIH-NIMHD U54 Research Center for Minority Serving Institutions (RCMI). Authors highlight four selected partnerships, and demonstrate how this approach has supported successful collaborations with research-cautious communities. These four selected as the community partners were willing to review or co-author a vignette of their experience for a peer-reviewed manuscript submission. This form of dissemination is often not valued in community settings and not covered under community partners’ scope of work. The intent of these descriptions is to illustrate the ways in which partners worked together to understand the expectations of their respective institutions and discuss skill integration. The intention is not to project community or university voice.
Funding Information:
The partners engaged in these projects had resources and time to work collaboratively, and to experience the benefits of diverse perspectives and skill sets. CAIR and SHERC CCPS provides the space and time for partners to learn from one another and work together to design locally relevant approaches to community identified challenges. This small internal funding strategy supports the first step of CBPR, finding well-matched community-university research partners and eliminates the initial burden that can be felt by new partners to yield project outcomes while still building trust. This approach can be a precursor and funded initial step to pilot grant programs often offered by large funded Centers and Training grants to stimulate research.
Funding Information:
The partners initially met during the academic partner’s year-long outreach to community members engaged in IDD support services in the region to inform this project’s development. The community partner invited the academic partner to join a Northern Arizona Community of Practice Transition Team (NACoPTT) group focused on supporting the success of youth with IDD in the region. The academic partner was fortunate to receive new investigator funding support from the American Occupational Therapy Foundation to complete a community-engaged photo story telling project with Native American youth with IDD focused on health and wellness [26]. Over the course of the next year, the community partner helped inform the scope and structure of the photo storytelling project, even co-hosting the project’s events at his place of work which was familiar to many young adults with IDD in the region. Throughout the original project, both partners stayed engaged on the NACoPTT efforts. The shared experience of working together on the coalition and on the year-long photo storytelling project led the partners to apply for CCPS funding through SHERC.
Funding Information:
From 2012–2016, 15 teams received CAIR partnership support. With the initiation of SHERC, eight teams were supported in the first two years (2016–2018). All funded partnerships completed their proposed work and the experience contributed to the professional growth of the community and university partners. Of the 23 funded, 13 of the partnerships are on-going. The work of three partnerships supported successful grant applications submitted by the partnering communities. Two partnerships shaped CBP research plans that were implemented as part of two junior investigators’ doctoral research. One partnership yielded a published, co-authored, peer-reviewed manuscript. The following four examples of community-university collaborative projects targeted key needs identified by communities and supported the initial step in integrating academic and practice-based expertise to address health equity. All featured partnerships are on-going. The first three were funded under CAIR in 2016 and the fourth under SHERC in 2018.
Publisher Copyright:
© 2018 by the authors. Licensee MDPI, Basel, Switzerland.
PY - 2019/1
Y1 - 2019/1
N2 - Marginalized communities have a documented distrust of research grounded in negative portrayals in the academic literature. Yet, trusted partnerships, the foundation for Community-Based Participatory Research (CBPR), require time to build the capacity for joint decision-making, equitable involvement of academically trained and community investigators, and co-learning. Trust can be difficult to develop within the short time between a funding opportunity announcement and application submission. Resources to support community-and academic-based investigators’ time to discuss contexts, concerns, integration of expertise and locally acceptable research designs and data collection are limited. The National Institutes of Health (NIH) funded Center for American Indian Resilience and the Southwest Health Equity Research Collaborative have implemented an internal funding mechanism to support community and academic-based investigators’ travel cost and time to discuss complementary areas of interest and skills and to decide if moving forward with a partnership and a collaborative grant proposal would be beneficial to the community. The rationale and administration of this Community-Campus Partnership Support (CCPS) Program are described and four examples of supported efforts are provided. Centers and training programs frequently fund pilot grants to support junior investigators and/or exploratory research. This CCPS mechanism should be considered as precursor to pilot work, to stimulate partnership building without the pressure of an approaching grant application deadline.
AB - Marginalized communities have a documented distrust of research grounded in negative portrayals in the academic literature. Yet, trusted partnerships, the foundation for Community-Based Participatory Research (CBPR), require time to build the capacity for joint decision-making, equitable involvement of academically trained and community investigators, and co-learning. Trust can be difficult to develop within the short time between a funding opportunity announcement and application submission. Resources to support community-and academic-based investigators’ time to discuss contexts, concerns, integration of expertise and locally acceptable research designs and data collection are limited. The National Institutes of Health (NIH) funded Center for American Indian Resilience and the Southwest Health Equity Research Collaborative have implemented an internal funding mechanism to support community and academic-based investigators’ travel cost and time to discuss complementary areas of interest and skills and to decide if moving forward with a partnership and a collaborative grant proposal would be beneficial to the community. The rationale and administration of this Community-Campus Partnership Support (CCPS) Program are described and four examples of supported efforts are provided. Centers and training programs frequently fund pilot grants to support junior investigators and/or exploratory research. This CCPS mechanism should be considered as precursor to pilot work, to stimulate partnership building without the pressure of an approaching grant application deadline.
KW - American Indians
KW - Community-based participatory research
KW - Disability
KW - Partnerships
UR - http://www.scopus.com/inward/record.url?scp=85059099392&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85059099392&partnerID=8YFLogxK
U2 - 10.3390/ijerph16010044
DO - 10.3390/ijerph16010044
M3 - Article
C2 - 30585213
AN - SCOPUS:85059099392
SN - 1661-7827
VL - 16
JO - International journal of environmental research and public health
JF - International journal of environmental research and public health
IS - 1
M1 - 44
ER -