Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018

Kelly A. Shaw; Susan Williams; Michelle M. Hughes; Zachary Warren; Amanda V. Bakian; Maureen S. Durkin; Amy Esler; Jennifer Hall-Lande; Angelica Salinas; Alison Vehorn; Jennifer G. Andrews; Thaer Baroud; Deborah A. Bilder; Adele Dimian; Maureen Galindo; Allison Hudson; Libby Hallas; Maya Lopez; Olivia Pokoski; Sydney Pettygrove; Katelyn Rossow; Josephine Shenouda; Yvette D. Schwenk; Walter Zahorodny; Anita Washington; Matthew J. Maenner

doi:10.1016/j.annepidem.2023.01.010

Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018

Kelly A. Shaw, Susan Williams, Michelle M. Hughes, Zachary Warren, Amanda V. Bakian, Maureen S. Durkin, Amy Esler, Jennifer Hall-Lande, Angelica Salinas, Alison Vehorn, Jennifer G. Andrews, Thaer Baroud, Deborah A. Bilder, Adele Dimian, Maureen Galindo, Allison Hudson, Libby Hallas, Maya Lopez, Olivia Pokoski, Sydney PettygroveKatelyn Rossow, Josephine Shenouda, Yvette D. Schwenk, Walter Zahorodny, Anita Washington, Matthew J. Maenner

Research output: Contribution to journal › Article › peer-review

6 Scopus citations

Abstract

Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and Developmental Disabilities Monitoring (ADDM) Network sites participated in a pilot project to link statewide health and education data to generate statewide and county-level prevalence estimates for a broader age range for their states for the first time. Results: Statewide prevalence of ASD for ages 3–21 years in 2018 ranged from 1.5% in Tennessee and Wisconsin to 2.3% in Arizona. The median county-level prevalence of ASD was 1.4% of residents ages 3–21 years. More boys than girls had ASD at all sites, and prevalence was lower among non-Hispanic Black, Hispanic, Asian/Pacific Islander, and American Indian/Alaska Native residents compared to non-Hispanic White residents at most sites. ASD prevalence estimates for children aged 8 years were similar to 2018 ADDM Network estimates that used record review to provide more in-depth information, but showed greater variation for children aged 4 years. Conclusions: Linkage of statewide data sets provides less detailed but actionable local information when more resource-intensive methods are not possible.

Original language	English (US)
Pages (from-to)	39-43
Number of pages	5
Journal	Annals of epidemiology
Volume	79
DOIs	https://doi.org/10.1016/j.annepidem.2023.01.010
State	Published - Mar 2023

Keywords

Autism
Autism spectrum disorder
Developmental disabilities
Public Health
Surveillance

ASJC Scopus subject areas

Epidemiology

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10.1016/j.annepidem.2023.01.010

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Shaw, K. A., Williams, S., Hughes, M. M., Warren, Z., Bakian, A. V., Durkin, M. S., Esler, A., Hall-Lande, J., Salinas, A., Vehorn, A., Andrews, J. G., Baroud, T., Bilder, D. A., Dimian, A., Galindo, M., Hudson, A., Hallas, L., Lopez, M., Pokoski, O., ... Maenner, M. J. (2023). Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018. Annals of epidemiology, 79, 39-43. https://doi.org/10.1016/j.annepidem.2023.01.010

Shaw, KA, Williams, S, Hughes, MM, Warren, Z, Bakian, AV, Durkin, MS, Esler, A, Hall-Lande, J, Salinas, A, Vehorn, A, Andrews, JG, Baroud, T, Bilder, DA, Dimian, A, Galindo, M, Hudson, A, Hallas, L, Lopez, M, Pokoski, O, Pettygrove, S, Rossow, K, Shenouda, J, Schwenk, YD, Zahorodny, W, Washington, A & Maenner, MJ 2023, 'Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018', Annals of epidemiology, vol. 79, pp. 39-43. https://doi.org/10.1016/j.annepidem.2023.01.010

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title = "Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018",

abstract = "Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and Developmental Disabilities Monitoring (ADDM) Network sites participated in a pilot project to link statewide health and education data to generate statewide and county-level prevalence estimates for a broader age range for their states for the first time. Results: Statewide prevalence of ASD for ages 3–21 years in 2018 ranged from 1.5% in Tennessee and Wisconsin to 2.3% in Arizona. The median county-level prevalence of ASD was 1.4% of residents ages 3–21 years. More boys than girls had ASD at all sites, and prevalence was lower among non-Hispanic Black, Hispanic, Asian/Pacific Islander, and American Indian/Alaska Native residents compared to non-Hispanic White residents at most sites. ASD prevalence estimates for children aged 8 years were similar to 2018 ADDM Network estimates that used record review to provide more in-depth information, but showed greater variation for children aged 4 years. Conclusions: Linkage of statewide data sets provides less detailed but actionable local information when more resource-intensive methods are not possible.",

keywords = "Autism, Autism spectrum disorder, Developmental disabilities, Public Health, Surveillance",

author = "Shaw, {Kelly A.} and Susan Williams and Hughes, {Michelle M.} and Zachary Warren and Bakian, {Amanda V.} and Durkin, {Maureen S.} and Amy Esler and Jennifer Hall-Lande and Angelica Salinas and Alison Vehorn and Andrews, {Jennifer G.} and Thaer Baroud and Bilder, {Deborah A.} and Adele Dimian and Maureen Galindo and Allison Hudson and Libby Hallas and Maya Lopez and Olivia Pokoski and Sydney Pettygrove and Katelyn Rossow and Josephine Shenouda and Schwenk, {Yvette D.} and Walter Zahorodny and Anita Washington and Maenner, {Matthew J.}",

note = "Publisher Copyright: {\textcopyright} 2023",

year = "2023",

month = mar,

doi = "10.1016/j.annepidem.2023.01.010",

language = "English (US)",

volume = "79",

pages = "39--43",

journal = "Annals of epidemiology",

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T1 - Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018

AU - Shaw, Kelly A.

AU - Williams, Susan

AU - Hughes, Michelle M.

AU - Warren, Zachary

AU - Bakian, Amanda V.

AU - Durkin, Maureen S.

AU - Esler, Amy

AU - Hall-Lande, Jennifer

AU - Salinas, Angelica

AU - Vehorn, Alison

AU - Andrews, Jennifer G.

AU - Baroud, Thaer

AU - Bilder, Deborah A.

AU - Dimian, Adele

AU - Galindo, Maureen

AU - Hudson, Allison

AU - Hallas, Libby

AU - Lopez, Maya

AU - Pokoski, Olivia

AU - Pettygrove, Sydney

AU - Rossow, Katelyn

AU - Shenouda, Josephine

AU - Schwenk, Yvette D.

AU - Zahorodny, Walter

AU - Washington, Anita

AU - Maenner, Matthew J.

PY - 2023/3

Y1 - 2023/3

N2 - Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and Developmental Disabilities Monitoring (ADDM) Network sites participated in a pilot project to link statewide health and education data to generate statewide and county-level prevalence estimates for a broader age range for their states for the first time. Results: Statewide prevalence of ASD for ages 3–21 years in 2018 ranged from 1.5% in Tennessee and Wisconsin to 2.3% in Arizona. The median county-level prevalence of ASD was 1.4% of residents ages 3–21 years. More boys than girls had ASD at all sites, and prevalence was lower among non-Hispanic Black, Hispanic, Asian/Pacific Islander, and American Indian/Alaska Native residents compared to non-Hispanic White residents at most sites. ASD prevalence estimates for children aged 8 years were similar to 2018 ADDM Network estimates that used record review to provide more in-depth information, but showed greater variation for children aged 4 years. Conclusions: Linkage of statewide data sets provides less detailed but actionable local information when more resource-intensive methods are not possible.

AB - Purpose: Autism spectrum disorder (ASD) prevalence information is necessary for identifying community needs such as addressing disparities in identification and services. Methods: Seven Autism and Developmental Disabilities Monitoring (ADDM) Network sites participated in a pilot project to link statewide health and education data to generate statewide and county-level prevalence estimates for a broader age range for their states for the first time. Results: Statewide prevalence of ASD for ages 3–21 years in 2018 ranged from 1.5% in Tennessee and Wisconsin to 2.3% in Arizona. The median county-level prevalence of ASD was 1.4% of residents ages 3–21 years. More boys than girls had ASD at all sites, and prevalence was lower among non-Hispanic Black, Hispanic, Asian/Pacific Islander, and American Indian/Alaska Native residents compared to non-Hispanic White residents at most sites. ASD prevalence estimates for children aged 8 years were similar to 2018 ADDM Network estimates that used record review to provide more in-depth information, but showed greater variation for children aged 4 years. Conclusions: Linkage of statewide data sets provides less detailed but actionable local information when more resource-intensive methods are not possible.

KW - Autism

KW - Autism spectrum disorder

KW - Developmental disabilities

KW - Public Health

KW - Surveillance

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SN - 1047-2797

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EP - 43

JO - Annals of epidemiology

JF - Annals of epidemiology

ER -

Statewide county-level autism spectrum disorder prevalence estimates—seven U.S. states, 2018

Abstract

Keywords

ASJC Scopus subject areas

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