TY - JOUR
T1 - Safeguarding the communication rights of minimally- or non-speaking people who are vulnerable to Facilitated Communication, Rapid Prompting (Spellers Method) and variants
AU - Hemsley, Bronwyn
AU - Beals, Katharine
AU - Lang, Russell
AU - Schlosser, Ralf W.
AU - Shane, Howard
AU - Simmons, William
AU - Skinner, Sharon
AU - Todd, James
N1 - Publisher Copyright:
© 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2025
Y1 - 2025
N2 - Among the universal rights recognised by the United Nations is the right of all people to communicate for themselves. And yet, certain vulnerable people are increasingly at risk of having their communication rights violated. Growing numbers of minimally- and non-speaking people are being subjected to Facilitated Communication, Rapid Prompting Method, Spellers Method, and variants—all referred to in this article as Facilitated Communication. The aim of this article was to (a) describe the populations most vulnerable to having their communication rights violated through the use of Facilitated Communication and variants; (b) describe the origins of Facilitated Communication and variants, and their characteristics; (c) provide guidance and protocols for safeguarding the communication rights of people subjected to these techniques, including authorship testing; and (d) suggest actions that responsible persons should follow to secure the minimally- or non-speaking person’s human right to independent, autonomous, and effective communication. Methods were a review of peer-reviewed and grey literature, scientific literature, legal cases, communication rights documents, guidance on communication methods, and clinical and lived experiences of the authors who include an autistic adult. Recommendations can help health and educational professionals and advocates to (a) recognise when Facilitated Communication and variants are being used, (b) be aware of methods used in reliable authorship evaluations, and (c) respond to the outcomes by providing the person with effective forms of augmentative and alternative communication that allow them unimpeded access to their communication rights.
AB - Among the universal rights recognised by the United Nations is the right of all people to communicate for themselves. And yet, certain vulnerable people are increasingly at risk of having their communication rights violated. Growing numbers of minimally- and non-speaking people are being subjected to Facilitated Communication, Rapid Prompting Method, Spellers Method, and variants—all referred to in this article as Facilitated Communication. The aim of this article was to (a) describe the populations most vulnerable to having their communication rights violated through the use of Facilitated Communication and variants; (b) describe the origins of Facilitated Communication and variants, and their characteristics; (c) provide guidance and protocols for safeguarding the communication rights of people subjected to these techniques, including authorship testing; and (d) suggest actions that responsible persons should follow to secure the minimally- or non-speaking person’s human right to independent, autonomous, and effective communication. Methods were a review of peer-reviewed and grey literature, scientific literature, legal cases, communication rights documents, guidance on communication methods, and clinical and lived experiences of the authors who include an autistic adult. Recommendations can help health and educational professionals and advocates to (a) recognise when Facilitated Communication and variants are being used, (b) be aware of methods used in reliable authorship evaluations, and (c) respond to the outcomes by providing the person with effective forms of augmentative and alternative communication that allow them unimpeded access to their communication rights.
KW - Autism
KW - Bill of Rights
KW - Facilitated Communication
KW - Rapid Prompting Method
KW - Spellers Method
KW - Spelling to Communicate
KW - communication
KW - pseudoscience
KW - rights
UR - https://www.scopus.com/pages/publications/105017478797
UR - https://www.scopus.com/pages/publications/105017478797#tab=citedBy
U2 - 10.1080/23297018.2025.2544116
DO - 10.1080/23297018.2025.2544116
M3 - Article
AN - SCOPUS:105017478797
SN - 2329-7018
VL - 12
SP - 158
EP - 178
JO - Research and Practice in Intellectual and Developmental Disabilities
JF - Research and Practice in Intellectual and Developmental Disabilities
IS - 2
ER -