Revision and psychometric testing of the City of Hope Quality of Life-Ostomy Questionnaire

Marcia Grant, Betty Ferrell, Grace Dean, Gwen Uman, David Chu, Robert Krouse

Research output: Contribution to journalArticlepeer-review

132 Scopus citations


Purpose: Ostomies may be performed for bowel or urinary diversion, and occur in both cancer and non-cancer patients. Impact on physical, psychological, social and spiritual well-being is not unexpected, but has been minimally described in the literature. The City of Hope Quality of Life (COH-QOL)-Ostomy Questionnaire is an adult patient self-report instrument designed to assess quality of life. This report focuses on the revision and psychometric testing of this questionnaire. Patients and methods: The revised COH-QOL-Ostomy Questionnaire involved in-depth patient interviews and expert panel review. The format consisted of a 13-item disease and demographic section, a 34-item forced-choice section, and a 41-item linear analogue scaled section. A mailed survey to California members of the United Ostomy Association resulted in a 62% response rate (n = 1513). Factor analysis was conducted to refine the instrument. Construct validity involved testing a number of hypotheses identifying contrasting groups. Results: Factor analysis confirmed the conceptual framework. Reliability of subscales ranged from 0.77 to 0.90. The questionnaire discriminated between subpopulations with specific concerns. Conclusions: Overall, the analyses provide evidence for the validity and reliability of the COH-QOL-Ostomy Questionnaire as a comprehensive, multidimensional self-report questionnaire for measuring quality of life in patients with intestinal ostomies.

Original languageEnglish (US)
Pages (from-to)1445-1457
Number of pages13
JournalQuality of Life Research
Issue number8
StatePublished - Oct 2004


  • Ostomy
  • Psychometric testing
  • Quality of life

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health


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