Research for all: building a diverse researcher community for the All of Us Research Program

Rubin Baskir; Minnkyong Lee; Sydney J. McMaster; Jessica Lee; Faith Blackburne-Proctor; Romuladus Azuine; Nakia Mack; Sheri D. Schully; Martin Mendoza; Janeth Sanchez; Yong Crosby; Erica Zumba; Michael Hahn; Naomi Aspaas; Ahmed Elmi; Shanté Alerté; Elizabeth Stewart; Danielle Wilfong; Meag Doherty; Margaret M. Farrell; Grace B. Hébert; Sula Hood; Cheryl M. Thomas; Debra D. Murray; Brendan Lee; Louisa A. Stark; Megan A. Lewis; Jen D. Uhrig; Laura R. Bartlett; Edgar Gil Rico; Adolph Falcón; Elizabeth Cohn; Mitchell R. Lunn; Juno Obedin-Maliver; Linda Cottler; Milton Eder; Fornessa T. Randal; Jason Karnes; Ki Tani Lemieux; Nelson Lemieux; Nelson Lemieux; Lilanta Bradley; Ronnie Tepp; Meredith Wilson; Monica Rodriguez; Chris Lunt; Karriem Watson

doi:10.1093/jamia/ocae270

Research for all: building a diverse researcher community for the All of Us Research Program

Rubin Baskir, Minnkyong Lee, Sydney J. McMaster, Jessica Lee, Faith Blackburne-Proctor, Romuladus Azuine, Nakia Mack, Sheri D. Schully, Martin Mendoza, Janeth Sanchez, Yong Crosby, Erica Zumba, Michael Hahn, Naomi Aspaas, Ahmed Elmi, Shanté Alerté, Elizabeth Stewart, Danielle Wilfong, Meag Doherty, Margaret M. FarrellGrace B. Hébert, Sula Hood, Cheryl M. Thomas, Debra D. Murray, Brendan Lee, Louisa A. Stark, Megan A. Lewis, Jen D. Uhrig, Laura R. Bartlett, Edgar Gil Rico, Adolph Falcón, Elizabeth Cohn, Mitchell R. Lunn, Juno Obedin-Maliver, Linda Cottler, Milton Eder, Fornessa T. Randal, Jason Karnes, Ki Tani Lemieux, Nelson Lemieux, Nelson Lemieux, Lilanta Bradley, Ronnie Tepp, Meredith Wilson, Monica Rodriguez, Chris Lunt, Karriem Watson

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

OBJECTIVES: The NIH All of Us Research Program (All of Us) is engaging a diverse community of more than 10 000 registered researchers using a robust engagement ecosystem model. We describe strategies used to build an ecosystem that attracts and supports a diverse and inclusive researcher community to use the All of Us dataset and provide metrics on All of Us researcher usage growth. MATERIALS AND METHODS: Researcher audiences and diversity categories were defined to guide a strategy. A researcher engagement strategy was codeveloped with program partners to support a researcher engagement ecosystem. An adapted ecological model guided the ecosystem to address multiple levels of influence to support All of Us data use. Statistics from the All of Us Researcher Workbench demographic survey describe trends in researchers' and institutional use of the Workbench and publication numbers. RESULTS: From 2022 to 2024, some 13 partner organizations and their subawardees conducted outreach, built capacity, or supported researchers and institutions in using the data. Trends indicate that Workbench registrations and use have increased over time, including among researchers underrepresented in the biomedical workforce. Data Use and Registration Agreements from minority-serving institutions also increased. DISCUSSION: All of Us built a diverse, inclusive, and growing research community via intentional engagement with researchers and via partnerships to address systemic data access issues. Future programs will provide additional support to researchers and institutions to ameliorate All of Us data use challenges. CONCLUSION: The approach described helps address structural inequities in the biomedical research field to advance health equity.

Original language	English (US)
Pages (from-to)	38-50
Number of pages	13
Journal	Journal of the American Medical Informatics Association : JAMIA
Volume	32
Issue number	1
DOIs	https://doi.org/10.1093/jamia/ocae270
State	Published - Jan 1 2025

Keywords

biomedical research
capacity building
research personnel
stakeholder engagement
training programs

ASJC Scopus subject areas

Health Informatics

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10.1093/jamia/ocae270

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Baskir, R., Lee, M., McMaster, S. J., Lee, J., Blackburne-Proctor, F., Azuine, R., Mack, N., Schully, S. D., Mendoza, M., Sanchez, J., Crosby, Y., Zumba, E., Hahn, M., Aspaas, N., Elmi, A., Alerté, S., Stewart, E., Wilfong, D., Doherty, M., ... Watson, K. (2025). Research for all: building a diverse researcher community for the All of Us Research Program. Journal of the American Medical Informatics Association : JAMIA, 32(1), 38-50. https://doi.org/10.1093/jamia/ocae270

Baskir, R, Lee, M, McMaster, SJ, Lee, J, Blackburne-Proctor, F, Azuine, R, Mack, N, Schully, SD, Mendoza, M, Sanchez, J, Crosby, Y, Zumba, E, Hahn, M, Aspaas, N, Elmi, A, Alerté, S, Stewart, E, Wilfong, D, Doherty, M, Farrell, MM, Hébert, GB, Hood, S, Thomas, CM, Murray, DD, Lee, B, Stark, LA, Lewis, MA, Uhrig, JD, Bartlett, LR, Rico, EG, Falcón, A, Cohn, E, Lunn, MR, Obedin-Maliver, J, Cottler, L, Eder, M, Randal, FT, Karnes, J, Lemieux, KT, Lemieux, N, Lemieux, N, Bradley, L, Tepp, R, Wilson, M, Rodriguez, M, Lunt, C & Watson, K 2025, 'Research for all: building a diverse researcher community for the All of Us Research Program', Journal of the American Medical Informatics Association : JAMIA, vol. 32, no. 1, pp. 38-50. https://doi.org/10.1093/jamia/ocae270

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title = "Research for all: building a diverse researcher community for the All of Us Research Program",

abstract = "OBJECTIVES: The NIH All of Us Research Program (All of Us) is engaging a diverse community of more than 10 000 registered researchers using a robust engagement ecosystem model. We describe strategies used to build an ecosystem that attracts and supports a diverse and inclusive researcher community to use the All of Us dataset and provide metrics on All of Us researcher usage growth. MATERIALS AND METHODS: Researcher audiences and diversity categories were defined to guide a strategy. A researcher engagement strategy was codeveloped with program partners to support a researcher engagement ecosystem. An adapted ecological model guided the ecosystem to address multiple levels of influence to support All of Us data use. Statistics from the All of Us Researcher Workbench demographic survey describe trends in researchers' and institutional use of the Workbench and publication numbers. RESULTS: From 2022 to 2024, some 13 partner organizations and their subawardees conducted outreach, built capacity, or supported researchers and institutions in using the data. Trends indicate that Workbench registrations and use have increased over time, including among researchers underrepresented in the biomedical workforce. Data Use and Registration Agreements from minority-serving institutions also increased. DISCUSSION: All of Us built a diverse, inclusive, and growing research community via intentional engagement with researchers and via partnerships to address systemic data access issues. Future programs will provide additional support to researchers and institutions to ameliorate All of Us data use challenges. CONCLUSION: The approach described helps address structural inequities in the biomedical research field to advance health equity.",

keywords = "biomedical research, capacity building, research personnel, stakeholder engagement, training programs",

author = "Rubin Baskir and Minnkyong Lee and McMaster, {Sydney J.} and Jessica Lee and Faith Blackburne-Proctor and Romuladus Azuine and Nakia Mack and Schully, {Sheri D.} and Martin Mendoza and Janeth Sanchez and Yong Crosby and Erica Zumba and Michael Hahn and Naomi Aspaas and Ahmed Elmi and Shant{\'e} Alert{\'e} and Elizabeth Stewart and Danielle Wilfong and Meag Doherty and Farrell, {Margaret M.} and H{\'e}bert, {Grace B.} and Sula Hood and Thomas, {Cheryl M.} and Murray, {Debra D.} and Brendan Lee and Stark, {Louisa A.} and Lewis, {Megan A.} and Uhrig, {Jen D.} and Bartlett, {Laura R.} and Rico, {Edgar Gil} and Adolph Falc{\'o}n and Elizabeth Cohn and Lunn, {Mitchell R.} and Juno Obedin-Maliver and Linda Cottler and Milton Eder and Randal, {Fornessa T.} and Jason Karnes and Lemieux, {Ki Tani} and Nelson Lemieux and Nelson Lemieux and Lilanta Bradley and Ronnie Tepp and Meredith Wilson and Monica Rodriguez and Chris Lunt and Karriem Watson",

note = "Publisher Copyright: Published by Oxford University Press on behalf of the American Medical Informatics Association 2024.",

year = "2025",

month = jan,

day = "1",

doi = "10.1093/jamia/ocae270",

language = "English (US)",

volume = "32",

pages = "38--50",

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T1 - Research for all

T2 - building a diverse researcher community for the All of Us Research Program

AU - Baskir, Rubin

AU - Lee, Minnkyong

AU - McMaster, Sydney J.

AU - Lee, Jessica

AU - Blackburne-Proctor, Faith

AU - Azuine, Romuladus

AU - Mack, Nakia

AU - Schully, Sheri D.

AU - Mendoza, Martin

AU - Sanchez, Janeth

AU - Crosby, Yong

AU - Zumba, Erica

AU - Hahn, Michael

AU - Aspaas, Naomi

AU - Elmi, Ahmed

AU - Alerté, Shanté

AU - Stewart, Elizabeth

AU - Wilfong, Danielle

AU - Doherty, Meag

AU - Farrell, Margaret M.

AU - Hébert, Grace B.

AU - Hood, Sula

AU - Thomas, Cheryl M.

AU - Murray, Debra D.

AU - Lee, Brendan

AU - Stark, Louisa A.

AU - Lewis, Megan A.

AU - Uhrig, Jen D.

AU - Bartlett, Laura R.

AU - Rico, Edgar Gil

AU - Falcón, Adolph

AU - Cohn, Elizabeth

AU - Lunn, Mitchell R.

AU - Obedin-Maliver, Juno

AU - Cottler, Linda

AU - Eder, Milton

AU - Randal, Fornessa T.

AU - Karnes, Jason

AU - Lemieux, Ki Tani

AU - Lemieux, Nelson

AU - Bradley, Lilanta

AU - Tepp, Ronnie

AU - Wilson, Meredith

AU - Rodriguez, Monica

AU - Lunt, Chris

AU - Watson, Karriem

N1 - Publisher Copyright: Published by Oxford University Press on behalf of the American Medical Informatics Association 2024.

PY - 2025/1/1

Y1 - 2025/1/1

N2 - OBJECTIVES: The NIH All of Us Research Program (All of Us) is engaging a diverse community of more than 10 000 registered researchers using a robust engagement ecosystem model. We describe strategies used to build an ecosystem that attracts and supports a diverse and inclusive researcher community to use the All of Us dataset and provide metrics on All of Us researcher usage growth. MATERIALS AND METHODS: Researcher audiences and diversity categories were defined to guide a strategy. A researcher engagement strategy was codeveloped with program partners to support a researcher engagement ecosystem. An adapted ecological model guided the ecosystem to address multiple levels of influence to support All of Us data use. Statistics from the All of Us Researcher Workbench demographic survey describe trends in researchers' and institutional use of the Workbench and publication numbers. RESULTS: From 2022 to 2024, some 13 partner organizations and their subawardees conducted outreach, built capacity, or supported researchers and institutions in using the data. Trends indicate that Workbench registrations and use have increased over time, including among researchers underrepresented in the biomedical workforce. Data Use and Registration Agreements from minority-serving institutions also increased. DISCUSSION: All of Us built a diverse, inclusive, and growing research community via intentional engagement with researchers and via partnerships to address systemic data access issues. Future programs will provide additional support to researchers and institutions to ameliorate All of Us data use challenges. CONCLUSION: The approach described helps address structural inequities in the biomedical research field to advance health equity.

AB - OBJECTIVES: The NIH All of Us Research Program (All of Us) is engaging a diverse community of more than 10 000 registered researchers using a robust engagement ecosystem model. We describe strategies used to build an ecosystem that attracts and supports a diverse and inclusive researcher community to use the All of Us dataset and provide metrics on All of Us researcher usage growth. MATERIALS AND METHODS: Researcher audiences and diversity categories were defined to guide a strategy. A researcher engagement strategy was codeveloped with program partners to support a researcher engagement ecosystem. An adapted ecological model guided the ecosystem to address multiple levels of influence to support All of Us data use. Statistics from the All of Us Researcher Workbench demographic survey describe trends in researchers' and institutional use of the Workbench and publication numbers. RESULTS: From 2022 to 2024, some 13 partner organizations and their subawardees conducted outreach, built capacity, or supported researchers and institutions in using the data. Trends indicate that Workbench registrations and use have increased over time, including among researchers underrepresented in the biomedical workforce. Data Use and Registration Agreements from minority-serving institutions also increased. DISCUSSION: All of Us built a diverse, inclusive, and growing research community via intentional engagement with researchers and via partnerships to address systemic data access issues. Future programs will provide additional support to researchers and institutions to ameliorate All of Us data use challenges. CONCLUSION: The approach described helps address structural inequities in the biomedical research field to advance health equity.

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KW - capacity building

KW - research personnel

KW - stakeholder engagement

KW - training programs

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Research for all: building a diverse researcher community for the All of Us Research Program

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