TY - JOUR
T1 - Reaching Populations to Address Disparities in Cancer Care Delivery
T2 - Results From a Six-Site Initiative
AU - Arring, Noël
AU - Friese, Christopher R.
AU - Ghosh, Bidisha
AU - Titler, Marita
AU - Hamann, Heidi
AU - Percac-Lima, Sanja
AU - Dobs, Adrian Sandra
AU - Naughton, Michelle J.
AU - Mishra, Pooja
AU - Simon, Melissa A.
AU - Chen, Bingxin
AU - Paskett, Electra D.
AU - Ploutz-Snyder, Robert J.
AU - Quinn, Martha
AU - Barton, Debra L.
N1 - Publisher Copyright:
© 2023 Harborside Press. All rights reserved.
PY - 2023/5
Y1 - 2023/5
N2 - Background: Large segments of the US population do not receive quality cancer care due to pervasive and systemic inequities, which can increase morbidity and mortality. Multicomponent, multilevel interventions can address inequities and improve care, but only if they reach communities with suboptimal access. Intervention studies often underenroll individuals from historically excluded groups. Methods: The Alliance to Advance Patient-Centered Cancer Care includes 6 grantees across the United States who implemented unique multicomponent, multilevel intervention programs with common goals of reducing disparities, increasing engagement, and improving the quality of care for targeted populations. The Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework informed the evaluation efforts across sites. Each Alliance site identified their intended populations, which included underrepresented minorities (eg, Black and Latinx persons), individuals who prefer a language other than English, and rural residents. We evaluated the demographic characteristics of participants to determine program reach. Results: Between 2018 and 2020, a total of 2,390 of 5,309 potentially eligible participants were enrolled across the 6 sites. The proportion of enrolled individuals with selected characteristics included 38% (n5908) Black adults, 24% (n5574) Latinx adults, 19% (n5454) preferring a language other than English, and 30% (n5717) rural residents. The proportion of those enrolled who were the intended population was commensurate to the proportion with desired characteristics in those identified as potentially eligible. Conclusions: The grantees met or exceeded enrollments from their intended populations who have been underserved by quality cancer care into patient-centered intervention programs. Intentional application of recruitment/engagement strategies is needed to reach individuals from historically underserved communities.
AB - Background: Large segments of the US population do not receive quality cancer care due to pervasive and systemic inequities, which can increase morbidity and mortality. Multicomponent, multilevel interventions can address inequities and improve care, but only if they reach communities with suboptimal access. Intervention studies often underenroll individuals from historically excluded groups. Methods: The Alliance to Advance Patient-Centered Cancer Care includes 6 grantees across the United States who implemented unique multicomponent, multilevel intervention programs with common goals of reducing disparities, increasing engagement, and improving the quality of care for targeted populations. The Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework informed the evaluation efforts across sites. Each Alliance site identified their intended populations, which included underrepresented minorities (eg, Black and Latinx persons), individuals who prefer a language other than English, and rural residents. We evaluated the demographic characteristics of participants to determine program reach. Results: Between 2018 and 2020, a total of 2,390 of 5,309 potentially eligible participants were enrolled across the 6 sites. The proportion of enrolled individuals with selected characteristics included 38% (n5908) Black adults, 24% (n5574) Latinx adults, 19% (n5454) preferring a language other than English, and 30% (n5717) rural residents. The proportion of those enrolled who were the intended population was commensurate to the proportion with desired characteristics in those identified as potentially eligible. Conclusions: The grantees met or exceeded enrollments from their intended populations who have been underserved by quality cancer care into patient-centered intervention programs. Intentional application of recruitment/engagement strategies is needed to reach individuals from historically underserved communities.
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U2 - 10.6004/jnccn.2023.7006
DO - 10.6004/jnccn.2023.7006
M3 - Article
C2 - 37041010
AN - SCOPUS:85159553060
SN - 1540-1405
VL - 21
SP - 481
EP - 486
JO - JNCCN Journal of the National Comprehensive Cancer Network
JF - JNCCN Journal of the National Comprehensive Cancer Network
IS - 5
ER -