TY - JOUR
T1 - Making waves
T2 - Systems change on behalf of youth with HIV/AIDS
AU - Botwinick, Geri
AU - Bell, Douglas
AU - Johnson, Robert L.
AU - Sell, Randall L.
AU - Friedman, Lawrence B.
AU - Dodds, Sally
AU - Shaw, Kimberly
AU - Martinez, Jaime
AU - Siciliano, Carl
AU - Walker, Lynn E.
AU - Sotheran, Jo L.
N1 - Funding Information:
This work was supported by grants from: HIV/AIDS Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services, and the Kaiser Family Foundation.
Funding Information:
The START Program’s Director, working collaboratively with Drs. John and Loretta Jemmot at the University of Pennsylvania, also received an HIV prevention grant funded by the National Institutes on Child Health and Human Development (NICHD) and Mental Health (NIMH) to target Latino adolescents in up to 12 schools in Philadelphia.
PY - 2003/8/1
Y1 - 2003/8/1
N2 - Purpose: To document the effects of five Special Projects of National Significance (SPNS), funded by the Health Resources and Services Administration (HRSA), on HIV care, related service systems, policy, planning, and funding for youth with HIV/AIDS. Methods: Literature on services and systems integration and technology transfer is used as a conceptual framework for the examination of HIV-informed, youth-specific changes at the local, state, and national levels. The Principal Investigators for each project and/or the Project Evaluators were interviewed several times to capture "snapshots" of evolving results from the Projects' varied activities in New York City; Newark, New Jersey; Chicago; and Miami. Some changes were consciously targeted, and others occurred serendipitously. This work covers the funding period from 1996 through 2000. Results and Conclusions: There were many "ripple" effects that emanated from these Projects' presence and activities. Important lessons were learned about why systems change is necessary to effectively serve youth with HIV, how to make constructive changes happen, and how to sustain changes once they are achieved. Successful strategies included, but were not limited to, consensus-building among stakeholders, participatory planning and decision-making, collaborative referral and linkage agreements, staff sharing, co-locating services, providing technical assistance, consultation, cross-training, and engaging consumers as partners in communicating new technologies and in advocating for change.
AB - Purpose: To document the effects of five Special Projects of National Significance (SPNS), funded by the Health Resources and Services Administration (HRSA), on HIV care, related service systems, policy, planning, and funding for youth with HIV/AIDS. Methods: Literature on services and systems integration and technology transfer is used as a conceptual framework for the examination of HIV-informed, youth-specific changes at the local, state, and national levels. The Principal Investigators for each project and/or the Project Evaluators were interviewed several times to capture "snapshots" of evolving results from the Projects' varied activities in New York City; Newark, New Jersey; Chicago; and Miami. Some changes were consciously targeted, and others occurred serendipitously. This work covers the funding period from 1996 through 2000. Results and Conclusions: There were many "ripple" effects that emanated from these Projects' presence and activities. Important lessons were learned about why systems change is necessary to effectively serve youth with HIV, how to make constructive changes happen, and how to sustain changes once they are achieved. Successful strategies included, but were not limited to, consensus-building among stakeholders, participatory planning and decision-making, collaborative referral and linkage agreements, staff sharing, co-locating services, providing technical assistance, consultation, cross-training, and engaging consumers as partners in communicating new technologies and in advocating for change.
KW - Adolescent HIV care
KW - HIV/AIDS
KW - Systems advocacy
KW - Systems change
UR - http://www.scopus.com/inward/record.url?scp=0043169745&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=0043169745&partnerID=8YFLogxK
U2 - 10.1016/S1054-139X(03)00156-3
DO - 10.1016/S1054-139X(03)00156-3
M3 - Article
C2 - 12888287
AN - SCOPUS:0043169745
SN - 1054-139X
VL - 33
SP - 46
EP - 54
JO - Journal of Adolescent Health
JF - Journal of Adolescent Health
IS - 2 SUPPL. 2
ER -