LGBTQ+ inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ+ state policy

  • Austin R. Waters
  • , Caleb W. Easterly
  • , Cindy Turner
  • , Lauren Ghazal
  • , Ida Tovar
  • , Megan Mulvaney
  • , Matt Poquadeck
  • , Stephen A. Rains
  • , Kristin G. Cloyes
  • , Anne C. Kirchhoff
  • , Erin E. Kent
  • , Echo L. Warner

Research output: Contribution to journalArticlepeer-review

5 Scopus citations

Abstract

Background: Emerging literature suggests that LGBTQ+ cancer survivors are more likely to experience financial burden than non-LGBTQ+ survivors. However, LGBTQ+ cancer survivors experience with cost-coping behaviors such as crowdfunding is understudied. Methods: We aimed to assess LGBTQ+ inequity in cancer crowdfunding by combining community-engaged and technology-based methods. Crowdfunding campaigns were web-scraped from GoFundMe and classified as cancer-related and LGBTQ+ or non-LGBTQ+ using term dictionaries. Bivariate analyses and generalized linear models were used to assess differential effects in total goal amount raised by LGBTQ+ status. Stratified models were run by online reach and LGBTQ+ inclusivity of state policy. Results: A total of N = 188,342 active cancer-related crowdfunding campaigns were web-scraped from GoFundMe in November 2022, of which N = 535 were LGBTQ+ and ranged from 2014 to 2022. In multivariable models of recent campaigns (2019–2022), LGBTQ+ campaigns raised $1608 (95% CI: −2139, −1077) less than non-LGBTQ+ campaigns. LGBTQ+ campaigns with low (26–45 donors), moderate (46–87 donors), and high (88–240 donors) online reach raised on average $1152 (95% CI: −$1589, −$716), $1050 (95% CI: −$1737, −$364), and $2655 (95% CI: −$4312, −$998) less than non-LGBTQ+ campaigns respectively. When stratified by LGBTQ+ inclusivity of state level policy states with anti-LGBTQ+ policy/lacking equitable policy raised on average $1910 (95% CI: −2640, −1182) less than non-LGBTQ+ campaigns from the same states. Conclusions and Relevance: Our findings revealed LGBTQ+ inequity in cancer-related crowdfunding, suggesting that LGBTQ+ cancer survivors may be less able to address financial burden via crowdfunding in comparison to non-LGBTQ+ cancer survivors—potentially widening existing economic inequities.

Original languageEnglish (US)
Article numbere6926
JournalCancer medicine
Volume13
Issue number3
DOIs
StatePublished - Feb 2024

Keywords

  • cost of care
  • crowdfunding
  • financial burden
  • financial hardship
  • financial toxicity
  • gender expansive
  • gender identity
  • sexual and gender minority
  • sexual minority
  • sexual orientation
  • transgender

ASJC Scopus subject areas

  • Oncology
  • Radiology Nuclear Medicine and imaging
  • Cancer Research

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