TY - JOUR
T1 - Increasing Hispanic Participation in Cognitive Research
T2 - An Examination of a Decade of Web-Based Recruitment into MindCrowd
AU - The Precision Aging Network Investigators
AU - Nuño, Tomas
AU - Ellingson, Katherine D.
AU - Chen, Zhao
AU - Both, Matt De
AU - Johnson, Megan
AU - Venkatachalam, Harshini
AU - Carrasco, Carolina
AU - Horton, Ashleigh
AU - Rubio, Melanie
AU - Yang, Yunjia
AU - Leito, Grace
AU - Nuqui, Sean
AU - Ryan, Lee
AU - Coon, David W.
AU - Huentelman, Matt
N1 - Publisher Copyright:
© The Author(s) 2024.
PY - 2024
Y1 - 2024
N2 - Introduction: The research community has struggled to successfully recruit and retain Hispanic participants into research studies. The purpose of our study is to describe Hispanic enrollment into our study across the past decade. We sought to identify trends in Hispanic engagement in internet-based recruitment over three distinct time periods including the COVID-19 pandemic. Methods: MindCrowd (MC) is a web-based research study that aims to identify potential factors influencing age-related cognitive decline and disease. The MC platform was launched on 01/2013 and as of 7/2023 has 403,633 participants. To explore Hispanic recruitment, we considered three different cohorts: 01/2013 through 03/2020 labeled as “MC1”, 04/2020 through 05/2022 labeled “MC-C19”, and 07/2022 to 07/2023 labeled “MC2”. We compared these three cohorts and examined the individual cohort demographics. Results: For the entire study, 22,067 (6%) identified as Hispanic. MC2 has demonstrated an increase in percent Hispanic recruitment compared to MC1 (8.0% vs 4.4%, respectively). Hispanic participation by U.S. State has a strong correlation with Hispanic population size in respective U.S. States (R = 0.9). Additionally, Hispanic recruitment during the COVID-19 pandemic increased. Conclusions: Improvement in internet-based Hispanic recruitment over time suggests the potential of innovative strategies to enhance their representation in health research.
AB - Introduction: The research community has struggled to successfully recruit and retain Hispanic participants into research studies. The purpose of our study is to describe Hispanic enrollment into our study across the past decade. We sought to identify trends in Hispanic engagement in internet-based recruitment over three distinct time periods including the COVID-19 pandemic. Methods: MindCrowd (MC) is a web-based research study that aims to identify potential factors influencing age-related cognitive decline and disease. The MC platform was launched on 01/2013 and as of 7/2023 has 403,633 participants. To explore Hispanic recruitment, we considered three different cohorts: 01/2013 through 03/2020 labeled as “MC1”, 04/2020 through 05/2022 labeled “MC-C19”, and 07/2022 to 07/2023 labeled “MC2”. We compared these three cohorts and examined the individual cohort demographics. Results: For the entire study, 22,067 (6%) identified as Hispanic. MC2 has demonstrated an increase in percent Hispanic recruitment compared to MC1 (8.0% vs 4.4%, respectively). Hispanic participation by U.S. State has a strong correlation with Hispanic population size in respective U.S. States (R = 0.9). Additionally, Hispanic recruitment during the COVID-19 pandemic increased. Conclusions: Improvement in internet-based Hispanic recruitment over time suggests the potential of innovative strategies to enhance their representation in health research.
KW - COVID-19
KW - Hispanic Americans
KW - disparities
KW - neurocognition
KW - recruitment
KW - web-based
UR - http://www.scopus.com/inward/record.url?scp=85210453199&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85210453199&partnerID=8YFLogxK
U2 - 10.1177/15404153241292257
DO - 10.1177/15404153241292257
M3 - Article
AN - SCOPUS:85210453199
SN - 1540-4153
JO - Hispanic Health Care International
JF - Hispanic Health Care International
ER -