TY - JOUR
T1 - health-related quality of life in HIV dis ease
T2 - Achieving a balance
AU - Murdaugh, Carolyn
N1 - Funding Information:
Carolyn Murdaugh, PhD, RN, FAAN, is professor and associate dean for research at the College of Nursing, University of South Carolina, Columbia, SC 29208. This study was funded by the National Institute of Nursing Research, National Institutes of Health when the author was chief of the laboratory of human responses in behavior and illness in the Division of Intramural Research. Address all correspondence to the author. Phone: 803-777-2868; fax: 803-777-5561; e-maih [email protected].
PY - 1998
Y1 - 1998
N2 - Using grounded theory methods, open-ended interviews were conducted with persons diagnosed with HIV disease to explore and describe how they adjust to living with their disease in relation to their healthrelated quality of life over the illness trajectory. A substantive theory was generated tliat describes the process of learning to live with the unpredictability of the disease to maintain life quality. "Achieving a Balance," the core process identified, describes the psychosocial adjustment process of persons with HIV disease from the time of diagnosis to their current circumstances. The process involves balancing the requirements of living with the progression of the disease with the desire to maintain control over one's life, to the extent possible, to maintain life quality. Achieving a Balance is described within the illness trajectory with four major stages - Disintegrating, Renormalizing, Coming to Terms, and Creating Meaning. Characteristics within these stages, which enhance or diminish life quality are described, and a definition of health-related quality, of life is proposed. Interventions are recommended for nurses who care for persons living with HIV disease.
AB - Using grounded theory methods, open-ended interviews were conducted with persons diagnosed with HIV disease to explore and describe how they adjust to living with their disease in relation to their healthrelated quality of life over the illness trajectory. A substantive theory was generated tliat describes the process of learning to live with the unpredictability of the disease to maintain life quality. "Achieving a Balance," the core process identified, describes the psychosocial adjustment process of persons with HIV disease from the time of diagnosis to their current circumstances. The process involves balancing the requirements of living with the progression of the disease with the desire to maintain control over one's life, to the extent possible, to maintain life quality. Achieving a Balance is described within the illness trajectory with four major stages - Disintegrating, Renormalizing, Coming to Terms, and Creating Meaning. Characteristics within these stages, which enhance or diminish life quality are described, and a definition of health-related quality, of life is proposed. Interventions are recommended for nurses who care for persons living with HIV disease.
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U2 - 10.1016/S1055-3290(98)80005-8
DO - 10.1016/S1055-3290(98)80005-8
M3 - Article
C2 - 9805297
AN - SCOPUS:0032199250
SN - 1055-3290
VL - 9
SP - 59
EP - 71
JO - Journal of the Association of Nurses in AIDS Care
JF - Journal of the Association of Nurses in AIDS Care
IS - 6
ER -