Health information - Evolving complexities of data privacy, security, and digital health in the Era of precision medicine

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Modern medicine produces reams of data that are shared through and with an ever-increasing number of network nodes and practitioners. Health privacy, which traditionally depended upon professional norms and physical boundaries, is now the subject of complex legal regimes and technological safeguards. Nonetheless, privacy breaches are a persistent, consequential problem for patients, their families, and a range of third parties. This Chapter introduces a lexicon of privacy terms; traces the evolution and protection of privacy protection historically; delineates the range of possible harms that can occur due to breaches; and emphasizes the need for both greater legal regulation and broader interdisciplinary work to protect health privacy in the age of Big Data and precision medicine.

Original languageEnglish (US)
Title of host publicationComprehensive Precision Medicine, First Edition, Volume 1-2
PublisherElsevier
PagesV1-545-V1-561
Volume1-2
ISBN (Electronic)9780128240106
DOIs
StatePublished - Jan 1 2023

Keywords

  • AI
  • Big data
  • Breach
  • Computer abuse
  • Computer fraud
  • Confidentiality
  • Data security
  • Electronic health record
  • HIPAA
  • Hacking
  • Health encounters
  • Healthcare
  • History and physical
  • Medical practice
  • Network theory
  • Personal health information data privacy
  • Personally identifiable information (PII)
  • Privacy
  • Tort

ASJC Scopus subject areas

  • General Agricultural and Biological Sciences
  • General Biochemistry, Genetics and Molecular Biology

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