Abstract
The lack of balanced recruitment for racial and ethnic groups in research protocols is an important ethical issue. African Americans have a history of forced participation, unethical research, and unwilling human dissection/demonstration that leads to a lack of participation in clinical research. We have embarked on a study of the pathophysiology of sudden death among African Americans which requires a limited autopsy of the heart. Our objective was to improve the recruitment rate in this study when compared with historical rates seen in clinical research and organ donation. We have screened 14 and enrolled 10 African Americans with sudden death (95% Cl 0.41-0.91). By addressing the concerns of the African-American community and involving qualified input in the planning stages of the study we have been able to significantly improve the recruitment rate for this important population subgroup.
Original language | English (US) |
---|---|
Pages (from-to) | 36-38 |
Number of pages | 3 |
Journal | Journal of the National Medical Association |
Volume | 92 |
Issue number | 1 |
State | Published - Jan 2000 |
Externally published | Yes |
Keywords
- African-American
- Autopsy
- Emergency department
- Recruitment
- Sudden cardiac death
ASJC Scopus subject areas
- General Medicine