Engaging Parents of Fragile Infants in the Design and Appraisal of Health Literature: An Español Toolkit for Necrotizing Enterocolitis

Christina Wyles, Sheila M. Gephart, Francesco Nunez

Research output: Contribution to journalArticlepeer-review

Abstract

What Was Observed or Investigated: The increased morbidity of diverse infants is unacceptable, and methods to reduce necrotizing enterocolitis (NEC) in their communities are needed. This article discusses the importance of the Español toolkit; provides a backstory of how the Español toolkit came about and how it was verified and validated; and concludes with impressions from involving parents in the research process. Subjects and Methods: After research evidence was translated from English into Spanish, a cross-sectional exploratory, descriptive, mixed-methods study was conducted, guided by the knowledge translation into practice (Translating Research Into Practice [TRIP]) framework. Twenty bilingual English-Spanish parents of fragile infants evaluated the NEC-Zero Español toolkit from a single neonatal intensive care unit. Results and Conclusions: The NEC-Zero Español toolkit was found to be easy-to-use and useful and provided information that can be used to augment information sharing. Having access to health information offers a meaningful way to start a conversation and may even impact positive behaviors such as breastfeeding promotion. To lessen Spanish speakers' linguistic barriers, providing materials in Spanish can help meet their information needs and initiate conversations with healthcare providers. This is particularly important because Hispanic infants are at high risk for NEC.

Original languageEnglish (US)
Pages (from-to)198-208
Number of pages11
JournalJournal of Perinatal and Neonatal Nursing
Volume36
Issue number2
DOIs
StatePublished - Apr 1 2022
Externally publishedYes

Keywords

  • healthcare disparities
  • infant/newborn
  • information science
  • necrotizing enterocolitis
  • parents/education

ASJC Scopus subject areas

  • Pediatrics
  • Critical Care
  • Maternity and Midwifery

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