@article{7bbbc492147d473bbab01ba10f451ee6,
title = "Documenting Cancer Information Seeking Behavior and Risk Perception in the Hualapai Indian Community to Inform a Community Health Program",
abstract = "Cancer incidence among American Indians (AIs) is low, yet their 5-year relative survival rate is the second lowest of all US populations. Culturally relevant cancer prevention education is key to achieve health equity. This collaborative project of the Hualapai Tribe and University of Arizona modified the National Cancer Institute{\textquoteright}s 2003 Health Information National Trends Survey (HINTS) to yield a more culturally relevant cancer information survey to document the health seeking behaviors and perceptions of cancer risks and preventability of AI adults residing in the Hualapai Indian community. A team of health care providers, educators and cancer survivors (six native and three non-natives) completed the adaptation. Four trained native surveyors administered the survey using a random household survey design. The Hualapai HINTS was well accepted (<5 % refusal rate) and was completed by 205 adults (20.5 % of all adult residents). Respondents reported a preference for and a trust in verbal cancer information and communication with health care professionals (77.1 % preference; 57.4 % trust) and at workshops (75.2 % preference; 45.5 % trust). Respondents were aware of some health behaviors associated with a reduced cancer risk, e.g., avoid tobacco use and need for screening. Respondents were less well informed about the role of diet and exercise. These findings were used to inform local cancer prevention education efforts and to develop a series of monthly workshops that engaged local health professionals to reinforce and discuss pathways of the primary role of lifestyle related factors, specifically diet and exercise in reducing cancer risk.",
keywords = "American Indian, Cancer, Health survey, Risk perception",
author = "Teufel-Shone, {Nicolette I.} and Felina Cordova-Marks and Gloria Susanyatame and Louis Teufel-Shone and Irwin, {Sandra L.}",
note = "Funding Information: Funding for this Project was provided by the Inter-tribal Council of Arizona{\textquoteright}s Southwest American Indian Collaborative Network Small Grants Program, the Arizona Department of Heath Services and the Susan G. Komen Foundation. We would like to express our gratitude to the Hualapai Community for participating in the survey and the Hualapai Tribal Council for approving the dissemination of results. Funding Information: The Hualapai Tribe of northwest Arizona is proactive in response to local concerns of recent increased cancer mortality and morbidity. The Hualapai reservation is 100–150 miles downwind from the Nevada atomic bomb test and in the 1950s and 1960s was exposed to clouds of carcinogenic particulates []. Tribal community members who were children during the period of greatest exposure are now in their 50s and 60s; local perception is that cancer diagnoses has increased for this generation, referred to as downwinders []. With funding through small grants received from the Susan G. Komen Foundation, Arizona State Department of Health and the National Cancer Institute (NCI) through the Inter-Tribal Council of Arizona{\textquoteright}s Southwest American Indian Collaborative Network (SAICN), the Hualapai Tribe partnered with the University of Arizona (UA), College of Public Health using a community-based participatory research (CBPR) approach to conduct a community-wide survey to gain insight into adults{\textquoteright} cancer information seeking behaviors and perceptions of cancer risk and preventability. The effort was strongly supported by the Tribal Council and community members who recognized that a survey of cancer knowledge could guide the design of a local cancer prevention and control program. The Tribe{\textquoteright}s intent was to honor existing knowledge and behaviors and to address gaps and misunderstandings in a locally relevant intervention program. Publisher Copyright: {\textcopyright} 2015, Springer Science+Business Media New York.",
year = "2015",
month = oct,
day = "4",
doi = "10.1007/s10900-015-0009-1",
language = "English (US)",
volume = "40",
pages = "891--898",
journal = "Journal of Community Health",
issn = "0094-5145",
publisher = "Springer Netherlands",
number = "5",
}