Development of a chronic care ostomy self-management program

Marcia Grant, Ruth McCorkle, Mark C. Hornbrook, Christopher S. Wendel, Robert Krouse

Research output: Contribution to journalArticlepeer-review

46 Scopus citations


Each year a percentage of the 1.2 million men and women in the United States with a new diagnosis of colorectal cancer join the 700,000 people who have an ostomy. Education targeting the long-term, chronic care of this population is lacking. This report describes the development of a Chronic Care Ostomy Self-Management Program, which was informed by (1) evidence on published quality-of-life changes for cancer patients with ostomies, (2) educational suggestions from patients with ostomies, and (3) examination of the usual care of new ostomates to illustrate areas for continued educational emphases and areas for needed education and support. Using these materials, the Chronic Care Ostomy Self-Management Program was developed by a team of multi-disciplinary researchers accompanied by experienced ostomy nurses. Testing of the program is in process. Pilot study participants reported high satisfaction with the program syllabus, ostomy nurse leaders, and ostomate peer buddies.

Original languageEnglish (US)
Pages (from-to)70-78
Number of pages9
JournalJournal of Cancer Education
Issue number1
StatePublished - Mar 2013


  • Chronic Care Ostomy Self-Management Program
  • Colorectal cancer
  • Colostomy
  • Ostomy

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health


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