Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI)

Anne E. Kazak; Kelly S. McClure; Melissa A. Alderfer; Wei Ting Hwang; Terry A. Crump; Lan T. Le; Janet Deatrick; Steven Simms; Mary T. Rourke

doi:10.1093/jpepsy/jsh055

Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI)

Anne E. Kazak
, Kelly S. McClure
, Melissa A. Alderfer
, Wei Ting Hwang
, Terry A. Crump
, Lan T. Le
, Janet Deatrick
, Steven Simms
, Mary T. Rourke

Research output: Contribution to journal › Article › peer-review

60 Scopus citations

Abstract

Objective: The goal of this study was to develop a reliable and valid method for assessing the cancer-related beliefs of parents with a child in treatment for cancer. Method: One hundred twenty-five families (119 mothers, 56 fathers) completed a measure of cancer-related beliefs written to reflect common themes associated with the diagnosis and treatment of childhood cancer. Participants also completed self-report questionnaires used for validation of the Family Illness Beliefs Inventory (FIBI). Results: Principal-components analysis was used to derive a 41-item five-factor solution from the maternal data-Factor 1: Treatment-Related Suffering; Factor 2: Death and Devastation; Factor 3: Caregiver Competence; Factor 4: Connection; and Factor 5: Finding Meaning. Correlations with validation measures supported the factor structure. Paternal data showed similar patterns. Conclusions: The FIBI is a psychometrically sound method for identifying parental cancer-related beliefs. This measure may be helpful in developing and evaluating interventions to reduce parental distress related to childhood cancer and promote adaptive family functioning.

Original language	English (US)
Pages (from-to)	531-542
Number of pages	12
Journal	Journal of pediatric psychology
Volume	29
Issue number	7
DOIs	https://doi.org/10.1093/jpepsy/jsh055
State	Published - Oct 2004
Externally published	Yes

Keywords

Beliefs
Childhood cancer
Families
Parents

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Developmental and Educational Psychology

Access to Document

10.1093/jpepsy/jsh055

Cite this

@article{2ded2b9e401247b7af3921f9b8ec9d19,

title = "Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI)",

abstract = "Objective: The goal of this study was to develop a reliable and valid method for assessing the cancer-related beliefs of parents with a child in treatment for cancer. Method: One hundred twenty-five families (119 mothers, 56 fathers) completed a measure of cancer-related beliefs written to reflect common themes associated with the diagnosis and treatment of childhood cancer. Participants also completed self-report questionnaires used for validation of the Family Illness Beliefs Inventory (FIBI). Results: Principal-components analysis was used to derive a 41-item five-factor solution from the maternal data-Factor 1: Treatment-Related Suffering; Factor 2: Death and Devastation; Factor 3: Caregiver Competence; Factor 4: Connection; and Factor 5: Finding Meaning. Correlations with validation measures supported the factor structure. Paternal data showed similar patterns. Conclusions: The FIBI is a psychometrically sound method for identifying parental cancer-related beliefs. This measure may be helpful in developing and evaluating interventions to reduce parental distress related to childhood cancer and promote adaptive family functioning.",

keywords = "Beliefs, Childhood cancer, Families, Parents",

author = "Kazak, \{Anne E.\} and McClure, \{Kelly S.\} and Alderfer, \{Melissa A.\} and Hwang, \{Wei Ting\} and Crump, \{Terry A.\} and Le, \{Lan T.\} and Janet Deatrick and Steven Simms and Rourke, \{Mary T.\}",

note = "Funding Information: This work was supported by a grant from the National Cancer Institute (CA88828). The authors wish to thank the following members of the Division of Oncology at The Children{\textquoteright}s Hospital of Philadelphia for their contributions to the development of the FIBI: M. Catherine Cant, PhD; Susan Ditaranto, RN; Mary McSherry, LSW; Lisa Meltzer, PhD; Jennifer McClain; Anne Reilly, MD; and Ellen Tracy, RN.",

year = "2004",

month = oct,

doi = "10.1093/jpepsy/jsh055",

language = "English (US)",

volume = "29",

pages = "531--542",

journal = "Journal of pediatric psychology",

issn = "0146-8693",

publisher = "Oxford University Press",

number = "7",

}

TY - JOUR

T1 - Cancer-related parental beliefs

T2 - The Family Illness Beliefs Inventory (FIBI)

AU - Kazak, Anne E.

AU - McClure, Kelly S.

AU - Alderfer, Melissa A.

AU - Hwang, Wei Ting

AU - Crump, Terry A.

AU - Le, Lan T.

AU - Deatrick, Janet

AU - Simms, Steven

AU - Rourke, Mary T.

N1 - Funding Information: This work was supported by a grant from the National Cancer Institute (CA88828). The authors wish to thank the following members of the Division of Oncology at The Children’s Hospital of Philadelphia for their contributions to the development of the FIBI: M. Catherine Cant, PhD; Susan Ditaranto, RN; Mary McSherry, LSW; Lisa Meltzer, PhD; Jennifer McClain; Anne Reilly, MD; and Ellen Tracy, RN.

PY - 2004/10

Y1 - 2004/10

N2 - Objective: The goal of this study was to develop a reliable and valid method for assessing the cancer-related beliefs of parents with a child in treatment for cancer. Method: One hundred twenty-five families (119 mothers, 56 fathers) completed a measure of cancer-related beliefs written to reflect common themes associated with the diagnosis and treatment of childhood cancer. Participants also completed self-report questionnaires used for validation of the Family Illness Beliefs Inventory (FIBI). Results: Principal-components analysis was used to derive a 41-item five-factor solution from the maternal data-Factor 1: Treatment-Related Suffering; Factor 2: Death and Devastation; Factor 3: Caregiver Competence; Factor 4: Connection; and Factor 5: Finding Meaning. Correlations with validation measures supported the factor structure. Paternal data showed similar patterns. Conclusions: The FIBI is a psychometrically sound method for identifying parental cancer-related beliefs. This measure may be helpful in developing and evaluating interventions to reduce parental distress related to childhood cancer and promote adaptive family functioning.

AB - Objective: The goal of this study was to develop a reliable and valid method for assessing the cancer-related beliefs of parents with a child in treatment for cancer. Method: One hundred twenty-five families (119 mothers, 56 fathers) completed a measure of cancer-related beliefs written to reflect common themes associated with the diagnosis and treatment of childhood cancer. Participants also completed self-report questionnaires used for validation of the Family Illness Beliefs Inventory (FIBI). Results: Principal-components analysis was used to derive a 41-item five-factor solution from the maternal data-Factor 1: Treatment-Related Suffering; Factor 2: Death and Devastation; Factor 3: Caregiver Competence; Factor 4: Connection; and Factor 5: Finding Meaning. Correlations with validation measures supported the factor structure. Paternal data showed similar patterns. Conclusions: The FIBI is a psychometrically sound method for identifying parental cancer-related beliefs. This measure may be helpful in developing and evaluating interventions to reduce parental distress related to childhood cancer and promote adaptive family functioning.

KW - Beliefs

KW - Childhood cancer

KW - Families

KW - Parents

UR - https://www.scopus.com/pages/publications/4644307730

UR - https://www.scopus.com/pages/publications/4644307730#tab=citedBy

U2 - 10.1093/jpepsy/jsh055

DO - 10.1093/jpepsy/jsh055

M3 - Article

C2 - 15347701

AN - SCOPUS:4644307730

SN - 0146-8693

VL - 29

SP - 531

EP - 542

JO - Journal of pediatric psychology

JF - Journal of pediatric psychology

IS - 7

ER -

Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI)

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this