Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI)

Anne E. Kazak, Kelly S. McClure, Melissa A. Alderfer, Wei Ting Hwang, Terry A. Crump, Lan T. Le, Janet Deatrick, Steven Simms, Mary T. Rourke

Research output: Contribution to journalArticlepeer-review

54 Scopus citations

Abstract

Objective: The goal of this study was to develop a reliable and valid method for assessing the cancer-related beliefs of parents with a child in treatment for cancer. Method: One hundred twenty-five families (119 mothers, 56 fathers) completed a measure of cancer-related beliefs written to reflect common themes associated with the diagnosis and treatment of childhood cancer. Participants also completed self-report questionnaires used for validation of the Family Illness Beliefs Inventory (FIBI). Results: Principal-components analysis was used to derive a 41-item five-factor solution from the maternal data-Factor 1: Treatment-Related Suffering; Factor 2: Death and Devastation; Factor 3: Caregiver Competence; Factor 4: Connection; and Factor 5: Finding Meaning. Correlations with validation measures supported the factor structure. Paternal data showed similar patterns. Conclusions: The FIBI is a psychometrically sound method for identifying parental cancer-related beliefs. This measure may be helpful in developing and evaluating interventions to reduce parental distress related to childhood cancer and promote adaptive family functioning.

Original languageEnglish (US)
Pages (from-to)531-542
Number of pages12
JournalJournal of pediatric psychology
Volume29
Issue number7
DOIs
StatePublished - Oct 2004
Externally publishedYes

Keywords

  • Beliefs
  • Childhood cancer
  • Families
  • Parents

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology

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