Body image distress in scleroderma

Shadi Gholizadeh, Rina S. Fox, Sarah D. Mills, Lisa R. Jewett, Brett D. Thombs, Vanessa L. Malcarne

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Changes in appearance are a common and distressing aspect of scleroderma. Disfigurement in scleroderma often occurs in areas of the body that are both visible and socially relevant (e.g., face and hands), which can contribute to increased social anxiety and avoidance. A case study is provided to share examples of common concerns and challenges associated with treating patients with scleroderma who are experiencing body image distress. Social, self-esteem, mood, and sexual impacts of body image distress are also discussed. The presence of significant body image concerns is not always associated with severity of appearance changes, thus open communication around changes in appearance is important regardless of perceived severity. Referrals to mental health professionals should be initiated as appropriate.

Original languageEnglish (US)
Title of host publicationScleroderma
Subtitle of host publicationFrom Pathogenesis to Comprehensive Management
PublisherSpringer International Publishing
Pages787-797
Number of pages11
ISBN (Electronic)9783031406584
ISBN (Print)9783031406577
DOIs
StatePublished - Apr 23 2024
Externally publishedYes

Keywords

  • Appearance changes
  • Body image
  • Disfigurement
  • Distress
  • Interventions
  • Quality of life

ASJC Scopus subject areas

  • General Medicine

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