American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States

Jaideep Kapur; Dave Clarke; Mill Etienne; Camilo Gutierrez; Barbara C. Jobst; Emily Johnson; Sucheta Joshi; Elaine T. Kiriakopoulos; David M. Labiner; Fred A. Lado; Alain Lekoubou; Daniel H. Lowenstein; Karen Parko; Ellen Riker; Renée A. Shellhaas; Joseph I. Sirven; Karen Skjei; John M. Stern; Timothy E. Welty; Adam B. Eickmeyer; Shawna L. Strickland

doi:10.1177/15357597251342227

American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States

Jaideep Kapur, Dave Clarke, Mill Etienne, Camilo Gutierrez, Barbara C. Jobst, Emily Johnson, Sucheta Joshi, Elaine T. Kiriakopoulos, David M. Labiner, Fred A. Lado, Alain Lekoubou, Daniel H. Lowenstein, Karen Parko, Ellen Riker, Renée A. Shellhaas, Joseph I. Sirven, Karen Skjei, John M. Stern, Timothy E. Welty, Adam B. EickmeyerShawna L. Strickland

Research output: Contribution to journal › Review article › peer-review

Abstract

Numerous factors including social determinants of health, knowledge gaps, economic challenges, workforce limitations, and health system deficiencies are associated with significant disparities in access to health care services and health outcomes for people with epilepsy (PWE). The American Epilepsy Society (AES) and the International League Against Epilepsy—North America (ILAE-NA) established a joint task force to explore and develop recommendations to address health care disparities experienced by PWE. The task force gathered foundational knowledge through meetings, public and patient organization comments and discussions to develop consensus recommendations. We enumerate the recommendations and discuss the rationale behind them to reduce disparities in epilepsy care through comprehensive research, inclusive clinical practices, robust advocacy, and targeted educational initiatives. While our recommendations are focused on the United States, we acknowledge that similar barriers and limitations exist for PWE globally and that these also need to be addressed within their local domains and with attention to unique factors therewithin.

Original language	English (US)
Article number	15357597251342227
Journal	Epilepsy Currents
DOIs	https://doi.org/10.1177/15357597251342227
State	Accepted/In press - 2025

Keywords

access to care
disparities
epilepsy
epilepsy disparities
social determinants of health

ASJC Scopus subject areas

Clinical Neurology

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10.1177/15357597251342227

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Kapur, J., Clarke, D., Etienne, M., Gutierrez, C., Jobst, B. C., Johnson, E., Joshi, S., Kiriakopoulos, E. T., Labiner, D. M., Lado, F. A., Lekoubou, A., Lowenstein, D. H., Parko, K., Riker, E., Shellhaas, R. A., Sirven, J. I., Skjei, K., Stern, J. M., Welty, T. E., ... Strickland, S. L. (Accepted/In press). American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States. Epilepsy Currents, Article 15357597251342227. https://doi.org/10.1177/15357597251342227

Kapur, J, Clarke, D, Etienne, M, Gutierrez, C, Jobst, BC, Johnson, E, Joshi, S, Kiriakopoulos, ET, Labiner, DM, Lado, FA, Lekoubou, A, Lowenstein, DH, Parko, K, Riker, E, Shellhaas, RA, Sirven, JI, Skjei, K, Stern, JM, Welty, TE, Eickmeyer, AB & Strickland, SL 2025, 'American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States', Epilepsy Currents. https://doi.org/10.1177/15357597251342227

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title = "American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States",

abstract = "Numerous factors including social determinants of health, knowledge gaps, economic challenges, workforce limitations, and health system deficiencies are associated with significant disparities in access to health care services and health outcomes for people with epilepsy (PWE). The American Epilepsy Society (AES) and the International League Against Epilepsy—North America (ILAE-NA) established a joint task force to explore and develop recommendations to address health care disparities experienced by PWE. The task force gathered foundational knowledge through meetings, public and patient organization comments and discussions to develop consensus recommendations. We enumerate the recommendations and discuss the rationale behind them to reduce disparities in epilepsy care through comprehensive research, inclusive clinical practices, robust advocacy, and targeted educational initiatives. While our recommendations are focused on the United States, we acknowledge that similar barriers and limitations exist for PWE globally and that these also need to be addressed within their local domains and with attention to unique factors therewithin.",

keywords = "access to care, disparities, epilepsy, epilepsy disparities, social determinants of health",

author = "Jaideep Kapur and Dave Clarke and Mill Etienne and Camilo Gutierrez and Jobst, {Barbara C.} and Emily Johnson and Sucheta Joshi and Kiriakopoulos, {Elaine T.} and Labiner, {David M.} and Lado, {Fred A.} and Alain Lekoubou and Lowenstein, {Daniel H.} and Karen Parko and Ellen Riker and Shellhaas, {Ren{\'e}e A.} and Sirven, {Joseph I.} and Karen Skjei and Stern, {John M.} and Welty, {Timothy E.} and Eickmeyer, {Adam B.} and Strickland, {Shawna L.}",

note = "Publisher Copyright: {\textcopyright} The Author(s) 2025.",

year = "2025",

doi = "10.1177/15357597251342227",

language = "English (US)",

journal = "Epilepsy Currents",

issn = "1535-7597",

publisher = "American Epilepsy Society",

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T1 - American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States

AU - Kapur, Jaideep

AU - Clarke, Dave

AU - Etienne, Mill

AU - Gutierrez, Camilo

AU - Jobst, Barbara C.

AU - Johnson, Emily

AU - Joshi, Sucheta

AU - Kiriakopoulos, Elaine T.

AU - Labiner, David M.

AU - Lado, Fred A.

AU - Lekoubou, Alain

AU - Lowenstein, Daniel H.

AU - Parko, Karen

AU - Riker, Ellen

AU - Shellhaas, Renée A.

AU - Sirven, Joseph I.

AU - Skjei, Karen

AU - Stern, John M.

AU - Welty, Timothy E.

AU - Eickmeyer, Adam B.

AU - Strickland, Shawna L.

PY - 2025

Y1 - 2025

N2 - Numerous factors including social determinants of health, knowledge gaps, economic challenges, workforce limitations, and health system deficiencies are associated with significant disparities in access to health care services and health outcomes for people with epilepsy (PWE). The American Epilepsy Society (AES) and the International League Against Epilepsy—North America (ILAE-NA) established a joint task force to explore and develop recommendations to address health care disparities experienced by PWE. The task force gathered foundational knowledge through meetings, public and patient organization comments and discussions to develop consensus recommendations. We enumerate the recommendations and discuss the rationale behind them to reduce disparities in epilepsy care through comprehensive research, inclusive clinical practices, robust advocacy, and targeted educational initiatives. While our recommendations are focused on the United States, we acknowledge that similar barriers and limitations exist for PWE globally and that these also need to be addressed within their local domains and with attention to unique factors therewithin.

AB - Numerous factors including social determinants of health, knowledge gaps, economic challenges, workforce limitations, and health system deficiencies are associated with significant disparities in access to health care services and health outcomes for people with epilepsy (PWE). The American Epilepsy Society (AES) and the International League Against Epilepsy—North America (ILAE-NA) established a joint task force to explore and develop recommendations to address health care disparities experienced by PWE. The task force gathered foundational knowledge through meetings, public and patient organization comments and discussions to develop consensus recommendations. We enumerate the recommendations and discuss the rationale behind them to reduce disparities in epilepsy care through comprehensive research, inclusive clinical practices, robust advocacy, and targeted educational initiatives. While our recommendations are focused on the United States, we acknowledge that similar barriers and limitations exist for PWE globally and that these also need to be addressed within their local domains and with attention to unique factors therewithin.

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KW - disparities

KW - epilepsy

KW - epilepsy disparities

KW - social determinants of health

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American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States

Abstract

Keywords

ASJC Scopus subject areas

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